Hey Everyone,
This is Poppa sending his first ever blog out. It's Tuesday afternoon and Mimi and Poppa are staying with Hayden while Mom and Dad take the afternoon to rest.
Hayden is currently on a low volume of respirator air and they plan to switch him to full self support this evening. This is a second shot at trying to wean him away from the vent. He is still on a small dose of sedative type medicine which makes him a little sleepy. Thus, he forgets to take deep breaths. It is a trial and error type of effort so it will take a little time. I don't think he has much pain. For that I am very grateful!!
I've had a thought that has rattled around in my head since last Tuesday. Hayden asked Mom if the surgery was going to hurt. That's a tough question to answer!
It made me think about life and so often I ask God...Is it gonna hurt? Sometimes, life hurts...a lot! PAIN MANAGEMENT CAN ONLY BE FOUND IN ONE PLACE! God is our only sorce to carry our hurt. I can safely say that lately I've hurt a lot!! And I can most assuredly tell you that the Great Physician has eased my pain...all of our pain as a family has been so powerfully managed. If anyone ever tells you that doubts and fear won't come, they are only fooling themselves. But as surely as they come, He provides the help!
Thank you for praying for us. You provide a cover for us to keep the wicked one at bay. Keep it up. Your prayers on our behalf are being heard by our Lord and He responds to the prayers of the people!! We love you all so much!
Poppa (Terry)
Hayden's Story
- Mimi23boys
- Hayden is a happy, energetic 5-year-old who loves to play any kind of sport that is available to him. He also loves to play video games and listen to all kinds of music, not to mention play his instruments which are drums and guitar. It has been about 2 years now since we found out about the brain tumor and from last surgery. This tumor is very rare and is located on his brain stem, which is a very delicate area. If you did not know him, you would just think he is a typical little 5-year-old full of questions and always playing tricks on you to make you laugh. He is so full of life, and we love him very much. Hayden, after surgery in Little Rock, Arkansas, is in Boston, Massachusetts, for radiation treatments. He is in great care and in God's hands, and we are praying for a quick recovery!
Look Who's Praying for Hayden!
On His Way to Little Rock
The bruise on Hayden's forehead is from his new baseball bat he got for his birthday.
17 comments:
Just read the update. God work is wonderful!! hope david and christy find some rest i know it won't be easy. We are all still praying for hayden and the family. May god bless you all.
with love daniel(boone) hope and caden.
Dear Family,
This is my first blog response as well. I have had you folks on my mind so many times a day...I'm so thankful for this site to find out what is happening and with the added phone calls to sis I feel well informed.Nurse Pat is so proud of you guys...you have come a long way.... since being with you 2 years ago at Vanderbilt Hosp I have seen how far you have come in being able to deal with a seriously ill child from a medical stand point . Keep up the good work...I know you are all very tired...please know that I'm a phone call away if you need anything. I send you my love, prayers,sense of humor for the really dfficult times and my strength.
P~
Just a quick note to let all know that we are still praying. Michael,Michelle, and Tyler The Nichelson Family
Dear friends, Will be praying with you all about the whining from the respirator. I to hope that Christy and David are able to get some much needed rest knowing that Hayden is with his loving grandparents. Prasing God for what He has already done for Hayden,and what He is contiuing to do. You are so right Mr. Terry about the storms of life and Who loves us and guides us through each one. Always faithful, never failing, always holding His arms out to hold us and bring us through. We serve a mighty and powerful God. Thanks for the update,praying,love to all, Ms sandra
Hello Chitwoods and Johnsons! I have been following your blog since Brooke emailed us the address and I just want you to know that you are in our nightly prayers. When I read your postings, I can feel the strength and love that you all have as a family and I know that you will all persevere together. We will continue to think of you all every day and think of your sweet little boy and how strong he is. We are all rooting for him and your family and we will continue to keep you in our prayers. Love, Charlotte
Just wanted to let all know that you are constantly on our minds and in our prayers. I know that you are all tired, and I am praying that God continues to give you strength each day. We don't understand why Hayden is having to go thru this, but we know God loves him and it is going to be OKAY!! Hang in there together. We hope you are home soon.
Love,
Alisa
CVBC
Thank you so much for the update. I check several times a day to see if there is news. I am so happy to hear that his pain is not bad. He is too sweet to hurt. We are praying for his recovery and we are still praying for complete healing. Our God can do that! You are in our thoughts many time a day. Judy & Gary
You are all in my prayers and thoughts. My heart hurts for all of you but especially Hayden. He is just a baby and I wish there was a way I could take his pain. May God bless you all!!!
Love, Patsy Stickel
You did a great job for your first time! My whole new california family is praying for y'all as well as me and Hailee. Hayden has awesome grandparents, you two are so strong and such a testimony. You never fall apart through tough times but give it to the Lord and still shout his praises. I love that! Thank you for letting Christy and David rest I know they need it and are forever greatful. Your support is amazing. We love y'all and really appreciate the updates. Amber Salas
Glad to hear that David and Christy were able to get some much needed rest. Praying that they are able to wean Hayden off the vent without any complications. Mr. Terry, your update was amazing. At a time when you are filled with pain and worry, you were able to touch others with your words and remind us who is always in ultimate control. Thank you. Know that your family is being lifted up in prayer each and every day.
In His Love,
Bambi Muylle
I am praying the weaning from the respirator is going well and so thankful Hayden is not in pain. You are never far from my thoughts and prayers and I will keep you there until Hayden is "good as new"! You are an awesome Mimi and Poppa and a great example of what a family really can be. Thanks so much for the updates. I read them everyday and share them with my prayer warrior friends who are also praying for Hayden's speedy and complete recovery!
Love to all,
Julie
Good Morning All,
Give Hayden a kiss from all of us and be assured the prayers are going up on his behalf. Missy just called and I checked the blog and saw your wonderful post from last night. What a testimony this is. He is the Great Physician and he is there with Hayden. We thank him daily for every blessing towards Hayden's healing. We are praying for small and large advances to take place today.
Love, Art,Debbie,Jenny,Moriah,Dirk,Missy,Eli,&Emma
Just wanted to let you know that I am praying for Hayden and the family every day. I check the blog daily (sometimes more than once) just to see if there are more wonderful news of how God is working in Hayden's life. What a trooper he is! I pray for God's strength to carry you through! Love you, Tina Carroll
I just checked in on the update for today - "you done good", Poppa! We are all still praying - for Hayden and for strength and comfort for the rest of you. May God continue to bless and keep you cradled in His arms. Vivian and Rickey
Thank you for the update and for your mini-sermon, Poppa Terry! (Shame on you for making me cry, though.) I'm glad Hayden is resting easier and not hurting.
People all over the world are reading updates on Hayden and praying for all your family. Sometimes they check in with me if I haven't posted or emailed anything new. What a work He's doing, not only in Hayden and all your family, but in everyone who comes in contact with your family's and Hayden's journey! Our story becomes His glory.
Hey Christy. Cindy Winn just gave me blog site, and I am so glad to keep up with Hayden's progress. You and you family are in our continued prayers. Lisa Kelley (crazy Karen's cousin!!)
Dear Family, we are praying for you daily. Just reading your blogs proves to us that God is there and giving you the peace that only He can give. We love you and miss you and pray that soon sweet little Hayden will be up and playing with little brother Mason.
Barbara and Vernie
Post a Comment