6 more treatments!!!!!

Hello everyone! We are on the homeward stretch of this radiation therapy. We are so excited we can hardly stand it. Please pray for Hayden to get through the rest of the time with no sickness or anything to hold us back from finishing. Hayden has done so well with all of this. Again we are so thankful and feel he deserves this with all the problems he has encountered with his surgeries. He has continued to amaze us with his resilience. He is excited to ring that bell on the last day of his treatment. There is a quote above it that reads- "Ring this bell three times well, its toll will clearly say my treatments are done my course has run and now I'm on my way!" How Awesome this will be. I will tear up I'm sure, but that's ok we deserve a little release.
Mason and Mimi,Papa and Jeremy are almost here in Boston to spend the last week with us. We can not wait!
Well, I will close for now...Thank you all for the vigilance you have shown in continuing to pray for us. We could not make it without all of you. A little shout out to Ms Sandra who also has commented on I think every blog to cheer us on! We love you!


Love to all,
Christy

11 treatments to go!!

Hello all,
We are happy it's Friday and more importantly we are happy it is almost the end to Hayden's radiation therapy. After this mornings treatment the official count will be 10 more!! Yeah!
Hayden has done remarkably well on this stretch of the journey. We could not be more pleased except to find at the time of his next scan they say there are no traces of this nasty tumor! At that point you all may hear me scream from every part of the country that you guys are reading from!! LOL. Seriously though; if they told us that, I would fall on my knees and cry out to God thanking and praising Him for it! We have been blessed to meet some amazing people here, all who have impacted our lives forever. We have some new friends that live here but have family from our neck of the woods in Tennessee. We were actually friends with her brother and never had met her until we have gotten to Boston. We love you Pathak family and feel like it's the beginning of a great new lasting friendship. Also please be in prayer for Lori and Jim's dad as he is battling his own fight with cancer.
Thank you Ms. Florence for the package you sent the boys. They will have many hours of fun with all the goodies. Most importantly thank you from the bottom of our hearts for being one of the biggest prayer warriors we have ever known. (folks she goes to my Aunts church and has never met Hayden) It is so humbling to know how many people have come to know and pray for our little guy! Thanks to all of you out there!


Talk to ya soon!!
Christy

15 treatments to go!!

Happy Sunday to everyone! We have had a good weekend. We were given Red Sox tickets for Friday's night game. We had a GREAT time, we had awesome seats. We sat right behind home plate, second row!! I know you baseball lovers are very jealous right now!! We feel lucky to have gotten to be that close. Hayden just had a blast. He also got a foul ball from batting practice before the game so he was beaming from ear to ear. Yesterday we just went down to Fanieul Hall and walked around watching the street performers. That's always a lot of fun.
Today our Sunday School (at home) class had a fish fry for Hayden. We appreciate everyone who took part in it! We love ya and we can't wait to be home!!
Please continue to pray for us, God has certainly heard the prayers of His people. Hayden has not had any of the problems with the radiation that they said he could. We are so very happy to see him getting stronger and having energy to get out and just be a little boy. Tuesday will be 6 weeks in so we are on the countdown for him to finish.


Talk to ya later,
Christy

16 treatments to go!!

We have had another good week. Hayden seems to just be floating through his treatments..God is Good! We saw the ENT on Tuesday. He said that yes we would need a surgery to fix that in Hayden's mouth. He has seen people just have the appliance made and and do fine with that and never have the surgery. We are just trying to get Hayden out if this time of procedures so he can rest. We also have to see how much the insurance will pay. Dr. Hartnick said they are pricey and most insurances do not cover it. We would rather have an appliance made and that be it if Hayden can handle it and not gag to much with it in. So..please be in prayer about this. We want what is best for him. We are getting closer to being done..everyday Hayden is marking it off on the calender. Mom, Dad Mason and Jeremy are coming in a couple of weeks to stay the last week with us. Please pray for their safety.

I must close for now,
Christy


Also there are a couple of familes of children that have brain tumors that need our prayers. Both families are going through tough times. Their names are Caleb Gill and Josiah(I'm not sure of his last name).

19 Treatments to go..

We had a good weekend, we hope you all did as well. We went to church with a family that their daughter is also having treatment. It was a very nice service, most of it was in Spanish. We wore headphones during the message so we could hear english. They did a dramatic presentation starting with the angel appearing to Mary saying she would be with child. It went on into Jesus as a young boy to healing the sick all the way into the death and resurrection. It was very beautiful to see and especially to hear all in Spanish.. I think Hayden enjoyed himself. Throughout the singing Hayden clapped the whole time even though he could not understand. I think it is beautiful to see people with so much passion for the Lord and uninhibited about it. We should be the same way, although sometimes we let what other people think determine how we act.
Hayden continues to do well. We are so pleased. We, are however getting homesick. We can't wait to see everyone and get back into a routine. We are very tired. It isn't so much physically but emotionally. Hayden having anesthia everyday and worrying about that to wishing we could all be together again. Thanks for all the prayers and your friendships, they mean so much!


Talk to you guys soon!

Christy

Counting Down..Halfway done!

Hayden has had another good week. He has lost some of the weight that he gained and so they are starting the appetite stimulant back. I knew this would happen..so it is frustrating to go back and forth regarding his weight. The doctor will keep an eye on his mask to make sure that
it doesn't get to tight.
We got to go to a Red Sox game last night and Hayden had a blast! It was a late game and we got home around 11pm last night and he was ready to play baseball on the Wii!! I had to make him go to bed. It was and is really good to see him with so much energy! He pulls us along which is something we have longed for for a long time. God is working among us and our prayers are being answered. Thank you Jesus! Hayden also had an Easter Egg hunt today and after that we
went to watch some sailboats sailing around the Charles River. It was a beautiful day today,finally warmer!

We hope everyone has a great Easter!
Love to all,
Christy

It's a new week and closer to coming home!

We have started another week in therapy and Hayden has done well. Mondays are somewhat nerve wracking because the port is accessed for the week. Hayden is getting so much better at it every week. He does wake up grumpy so it takes about an hour or hour in a half for him to be back to himself.
We had a great weekend. The Big Apple Circus was a lot of fun. We took pictures and put them on Facebook if any of you are on that. We spent some time with another family on Sunday. Their daughter is also having therapy(Mikaela). She is 3 so Hayden really doesn't play with her to much, which I wished he had some other kids his age. Today was supposed to be opening day for the Red Sox so Hayden was decked out in his jersey and hat. It is crazy here when it comes to baseball but I love it. All the nurses and other people were decked out as well! But...it's raining today so the game was canceled until tomorrow.

Well, I will close for now; Hayden has OT and an appointment with the pedi-oncologist this afternoon.

Christy

THE WEEKEND-YES!

Hayden is done with treatments for this week. We are looking forward to the weekend. Although, it is raining here. We are going to the Big Apple Circus on Saturday. I'm sure we will have fun.
We are contininuing to be encouraged by how well Hayden is doing!!

Have a great weekend folks!

Christy

3 weeks into treatment!

We have had a good week this week. Hayden continues to do well with his treatments. We were told today that we would have to stop the appetite stimulant because his mask is getting tight. The mask that I am speaking about is one that they specially make for each individual. It is made of a plastic that is warmed and molded to his face. It is used for stabilization while he is having treatment done. This stinks because we have wanted him to gain weight for so long and now we are being told he can't gain anymore for now. He also woke up yesterday with a bad rash on his arm and now it has spread all over his body. We went to the doctor and they feel it is from a virus of some sort. We did do blood work and a blood culture and that came back OK. The culture has not grown anything either. On Monday we also saw a speech therapist. She performed some tests and feels that Hayden will need surgery. The best way to describe it is that Hayden is like a person with a cleft palette. Most of you know that the last surgery in Little Rock they went through his mouth so the palette is not moving like it should which causes air to leak out of his nose. She did say that we could make a retainer of sorts that would help for the time being but surgery was necessary. Please be in prayer about this, Hayden has been shy about talking because he knows he sounds different. He has expressed that he does not want to be made fun of. We all know that kids can be cruel.

I will close for now..I have not posted everyday because thanfully things are going well with little change. However, we sure miss your comments and aren't sure how many are still following this. It really helps us to hear from you guys.
Also pray for Mason he has asked several times when we were picking him up to take him home. We are missing him terribly!!!

Christy