Hello All,
Well I finally got to get back to the blog and update you all. I'm sure you all have heard of Sleepless in Seattle well this is called sleepless in Little Rock. Daddy has taken a break with Mason and gone to the hotel to eat and sleep- a nap anyways. Mom and Hayden are a sleep and I figured I would keep watch and let Mom get some much needed rest while I update the blog.
Hayden's tongue continues to be a problem and he grows very frustrated when trying to talk to tell us about what he wants etc. He had PT this am and he did absolutely wonderful. Playing basketball, walking, painting, hockey etc. So we are excited about that, now is we can just get this swelling to go down and be able to see if swallowing is ok so he can get trach out and eat real food. He ask for ice cream earlier and it just broke my heart ( an Moms) to watch Mom have to tell him no. Morale is getting a little low as we are approaching a 1 month stint with this tour of duty with this surgery knowing that we have to return one more time and not sure of what the future holds. I feel God has given me a peace about the outcome.At times when I try to relay to Mom who is really struggleing watching her baby struggle so, I allow satan to get me down to and so I am weak relaying God's faithfulness and His already abundant healing thus far and His promise to complete what He has started.
So here are prayer concerns:
1) Hayden's tongue-no more swelling
2)Rest and peace for Mom and Dad, Hayden and family
3) Give us calmness to try and figure out what Hayden is trying to tell us because of swelling in tongue and clear vision so we will know w/o frustrating him even more because we cannot understand speech.
4)All blood work comes back clear with no problems, no more set backs. (I hate to ask you to pray for this but it has become a problem) Hayden will urinate(peepee) on a regular basis. He seems to be holding this and not wanting to go and there is not infection there so we need water works to happen.
5) Hayden's energy level to come up a little, he seems really tired.
6) Upcoming surgery. Wisdom for parents and Drs.
To our family and friends, thank you again for the many prayers being lifted up on Hayden's behalf. I would however like to add one more prayer request. My Mom (Betty Cart has been in hospital with pneumonia and is now at home) pray for continued healing of her lungs and energy to return.
We love you all,
Still Praising Him for His Faithfulness,
Mime
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8 comments:
Hang in there. There is a light at the end of the tunnel. It may be a long tunnel yet, but it is there.
Hugs and kisses to all!
Uncle Ronny & Aunt Cindy
Hi Mimi, It is so hard to be where you are right now. On one hand you have seen the power of God for Hayden and you all. Also knowing that God will get Hayden through the rest of this. However seeing Hayden's frustration,trying to commuicate and the tongue still swollen is pulling at your hearts. God understands our hearts and frustrations. We know he will not give more then we can bare. buy your bodies are emotionally and physically tired, which makes us restless. God has brought you all along way,He will see you through the rest of this journey. He understands and feels your every care. He knows that what you are feeling is out of love for your very special grandson. I will keep praying for all the things you requested,adding your Mom,too. Your great faith in God will continue to hold you and get you through. One day at a time,dear friend. Love you all,Ms Sandra
Tell Hayden the shampoo was slick but you can,t fool those nurses they know all the tricks I was proud to hear that you have been playing ball keep upthat good work Take it easy on Mom and Dad and Mimi and grandaddy you are so strong and they need some help from you you know God is Good
I will be sending your papers for Sunday School that way when you get back you will be caught up on the Bible verse for each Sunday
You thought you had pulled on Ms Valerie no way
Tell you Dad that you need a big A in your room ha ha for Awesome that's what you re Hayden
Love and Kisses and Prayers to all of you
and tell Mason we miss him at PDO
Roll Tide I mean see ya later
Love Ms Valerie
All this seems endless right now, but "weeping endures for a night, but joy comes in the morning." There WILL be a morning. We can't see it yet. Guess that's why it's called faith. (But I sure get impatient waiting, and you all must feel that a hundred times over.)
Love, hugs, and prayers,
Karen P.
LOVE YOU ALL! Will be praying specifically for that tongue swelling to go down and for you all to have renewed strength that only HE can give! Praying continually! Tina Carroll
You remain in our prayers and we appreciate the updates especially the specific requests. Love to you all.
Sheila Perry
In The Message Philippians 4:6-7 says "Don't fret or worry. Instead of worrying, pray. Let petitions and praises shape your worries into prayers, letting God know your concerns. Before you know it, a sense of God's wholeness, everything coming together for good, will come and settle you down. It's wonderful what happens when Christ displaces worry at the center of your life."
I thought of all of you when I read this today. I know it's easy for me to say these things, but I'm not in your shoes watching this precious boy go through everything he is going through. But we have to keeping praying knowing that God is with Hayden and with all of you. We will continue to pray hard for this tough little man and believe that God WILL take care of him.
In Christian Love
Judy and Gary Bloodworth
Stay strong! If any family can do it, it's definitely y'all. You touch my heart so deeply by praising God through this all! Just keep it up. It probably feels like you are sinking, but remember on Christ the solid rock we stand and all other ground is sinking sand. You are on a solid rock!!! I pray that God cradles you in his arms until this is all over. Hayden is amazingly strong, and funny. Thanks for the specific requests. Love, Amber Salas
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