Hurray for Home!

Saturday, January 3, 2009

Hello Everyone,
Happy New Year to all!! Just wanted to update you all about news we received from Lorie at Dr. Al-Mefty's office. She talked with Dr. Al Mefty who is out of the country until Friday of next week and he asked if Christy had gotten all the plans together (flight info, etc) to go to Boston. Christy did not want to do anything until she got some answers to questions she has for Dr. Al-Mefty. She did however get to talk to Dr. Liebsch regarding some questions she/we had on why no surgery, etc. Any ways long story short they will be headed to Boston for another MRI (last one was done in November before leaving Little Rock after surgery and there was still some swelling there) and if all looks like well they will begin radiation therapy on Hayden's tumor. If they see something they can't do with radiation then we will have to return to Little Rock for more surgery then back to Boston for radiation. But at this point they believe they can do radiation to remove rest of tumor. So PRAISE GOD for all He is doing to heal Hayden w/o more surgery and please continue to pray that that will be the case (no more surgery). Without talking to Dr. Al-Mefty and getting questions answered by him we are moving forward with guarded optimism with the above info but also with thankfulness that God is in control and He sees the big picture of what is needed for Hayden. So we would like to send these prayer requests out to you all:

1) Safe trip to Boston. All who are involved in Hayden's behalf (Dr's, nurses, parents) will make the right decisions about what to do next.
2) When the Boston MRI is done they(Dr. Liebsch & Assoc) will be able to see anything they need to to make the right decision about radiation or more surgery and then radiation (we would prefer no surgery but whatever is best for Hayden is what we want to see done)
3) The transition from life at home and life in Boston for 8 weeks will go smoothly(travel arrangements, housing, transportation etc. plus whether Mimi and brother Mason need to go or stay at Mimi's. If Mimi and Mason stay home that Mason will do well with rest of family away from him for 8 weeks and Mommy, Daddy and Hayden will do well being away from Mason.
4) That Hayden will tolerate the radiation well with no problems and the radiation will hit the tumor and totally get rid of the tumor and no other areas of the brain stem will be compromised (nerves to areas of the body for just about everything are located in this delicate area of the stem).
5) Hayden will have to be sedated to have the radiation treatments which will be every day for 15-20 minutes a day for 8 weeks. (Sedation every day which is scary to us) So please pray that he will be able to do well with this also. He gets very, very agitated after he has been sedated and nothing seems to help with this issue.)

This is not pertaining to Hayden's tumor but this lady has been such a prayer warrior for him her name is Ms Florence and she goes to Osborne Bapt. Church in NC and she is having some health issues and not doing well so please include her in your prayer time that God would heal her body.

Well these are the prayers requests for now subject to change with a phone call from a Drs office.
Thank you all for following our journey and being so faithful to pray for our family and watching how God is hearing and answering these prayers. We are so blessed each time we look at the comments from each one of you. You'll never know how much we appreciate getting the words of encouragement, prayers and support to our family.

Must close for now.......

Thanking God for His goodness,
Mimi

5 comments:

Anonymous said...

Hi dear friends, I will be praying for all the needs for Hayden. Also for all the decisions that need to be made for Hayden and Mason. I add Ms Florence to my prayer list, God has brought you all through a most difficult year. You have seen his power, and He will continue to bring you all through the rest of this journey. Love you all,Ms Sandra

Anonymous said...

Shalom everyone
Sharon shared y'alls good news when she visited me at the hospital I am so delighted and grateful to the Lord for all He has done for y'all He is so good to all of us I have a long way to go but with the help of the Lord I am on my way
May you get wonderful news from Boston Sharon and I are expecting a miracle
God bless and keep all of you I pray for y'all several times a day You are dear to my heart but especially dear and precious to the heart of Jesus our Lord and Savior
God bless and keep y'all
Love and prayers in Christ Jesus
Florence Morris
Osborne Baptist Church
Eden NC

Anonymous said...

We are continuing to pray for your family over here in Cali. My heart also goes out to Ms. Florence as well as little Mason and Christy &David for possibly being away from each other for such a long time. Y'all have a lot of difficult decisions to make,thank goodness that God is with each one! Hayden sure does have an awesome testimony for such a young fellow! May God's love flood over your family this new year. In his name, Amber Salas

Anonymous said...

Remaining in daily prayer for all of you Any news from Boston?
I am improving and certainly do thank y'all for your prayers Prayer works!
Y'all take care and continue to grip that Nail-Scarred Hand tightly
God is able!
God bless
Prayerfully in Christ Jesus
Florence Morris
Osborne Baptist Church
Eden NC

Anonymous said...

Hi little darlings
Hope that all is going well and that y'all are enjoying the many blessings of the Lord
God bless and keep y'all always
Prayerfully
Florence Morris
Osborne Baptist Churxh
Eden NC