We have had a good week this week. Hayden continues to do well with his treatments. We were told today that we would have to stop the appetite stimulant because his mask is getting tight. The mask that I am speaking about is one that they specially make for each individual. It is made of a plastic that is warmed and molded to his face. It is used for stabilization while he is having treatment done. This stinks because we have wanted him to gain weight for so long and now we are being told he can't gain anymore for now. He also woke up yesterday with a bad rash on his arm and now it has spread all over his body. We went to the doctor and they feel it is from a virus of some sort. We did do blood work and a blood culture and that came back OK. The culture has not grown anything either. On Monday we also saw a speech therapist. She performed some tests and feels that Hayden will need surgery. The best way to describe it is that Hayden is like a person with a cleft palette. Most of you know that the last surgery in Little Rock they went through his mouth so the palette is not moving like it should which causes air to leak out of his nose. She did say that we could make a retainer of sorts that would help for the time being but surgery was necessary. Please be in prayer about this, Hayden has been shy about talking because he knows he sounds different. He has expressed that he does not want to be made fun of. We all know that kids can be cruel.
I will close for now..I have not posted everyday because thanfully things are going well with little change. However, we sure miss your comments and aren't sure how many are still following this. It really helps us to hear from you guys.
Also pray for Mason he has asked several times when we were picking him up to take him home. We are missing him terribly!!!
Christy
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11 comments:
Christy, we read your blog every day and pray afterwards. Many, many prayers are prayed for you and your family.
Mary Anna (still in Alaska)
We love you!
Will certainly be praying about the surgery on Hayden's mouth, and all other concerns. I know it is hard to be away from Mason. Hopefully this time in Boston will go by quitely and you will all be together soon. Mailed Hayden's box today, so be on the watch for it in about five days. Very thankful that Hayden is doing so well on the most part. God is faithful! Love you all, Ms Sandra
Dear Loved Ones in Christ
I read and pray each day for y'all Sometimes it is difficult to leave a comment as Google/Blogger never remembers me and I have to go through the entire sign-up process over and over as they sometimes do not post the handicapped verification
God bless your dear hearts You will never be forgotten We have become like family over these long months
God bless and help y'all face each new challenge
Hugs to all and don't forgot our Mason He is loved too!
Love and prayers in Christ Jesus
Florence Morris
Osborne Baptist Church
Eden NC
I check it everyday and pray for you all each night. Thankful that all seems to be going well.
It's so good to hear that all is going so well. I will be praying that Hayden will begin to surprise the Speech Therapists and that God will reach into his mouth and make his speech be the way God wants it to be.
Also praying for you as you miss Mason, I know how hard it can be to balance life between medically challenged children and typical growing children. It's a huge balance act, filled at times with frustration and pain.
Love in Christ,
Suzi
Don't worry. There are many of us still reading each day. We are also still praying and waiting for any word of good news, or of ways that we can help you. We love you and are here for you and your family.
Crissy, We all are still here with you..we read the blog every day and pray it's going to say Hayden's had a good day. I talk with your Mom as well often
the little man keeps her busy and it's great hearing all the funny stories about what Mason has been into so keep your head up girlfriend.We love you!!
P~
I think I'm obsessed with the blog!! I check it several times a day!! So very glad to hear things continue to go well! You guys are almost halfway there!
Hayden--I miss you terribly!! I can't wait for you to come back to Mimi and Papa's house and we can play baseball in the back yard!! You have a surprise coming soon!! Love you Buddy!
Love you guys!
Allison
Hi there,
We have had good weather this weekend so far. Supposed to get more rain today with high of 75. Then snow tomorrow! Don't think we will get anything but flurries, gonna be cold though.
Think about you all the time. Alexis and Aaron ask about Hayden, and when they can play with him again. Told them where he is but they don't quite understand. That's ok, they can play soon.
I know that Mason misses you, but he will be so excited when you get there he won't even remember you were gone. Love you all and continue to pray for you. God is there with every step you take and He will take very good care of Hayden.
Miss you, Kim and Jerry
Hi,
I’m praying for you and I read your blog even though I don’t post. I understand Hayden’s speech bothering him and I’m praying for that.
Suzi, Luke’s Mom, is my sister.
May the LORD bless you,
~ Cindy
“The LORD your God is with you,
He is mighty to save.
He will take great delight in you,
He will quiet you with his love,
He will rejoice over you with singing."
Zephaniah 3:16-17
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